Privacy:

St Vincent’s Hospital recognises that your privacy is important and that in accordance with the Privacy Act 1988 (Commonwealth) and the Health Records and Information Privacy Act 2002 (NSW), we have an obligation to protect the integrity of your personal information. This statement sets out the policy relating to the collection and use of your personal information in the Wellbeing Cards.

We will not disclose your personal information without your consent unless:

  • we believe there is a serious and imminent threat to the life, health or safety of yourself or another person;
  • we need to investigate or report on activity which we believe on reasonable grounds to be unlawful;
  • disclosure is required or authorised by law (for example where a regulatory authority has the power to request the provision of certain records or information);
  • disclosure is necessary to enable an enforcement body to perform its functions, for example, the prevention, detection, investigation, prosecution or punishment of criminal offences; and the preparation for, or conduct of, proceedings before any court or tribunal, or implementation of the orders of a court or tribunal.

How is information stored?

You have the right to request your data at any time and we will comply.  You are responsible for maintaining the security and confidentiality of your username and password, for logging off from the program after finishing, and for not letting other people use your account. Please notify us immediately if there is any unauthorised use of your account by any other Internet user or any other breach of security.

The Wellbeing Cards  Internet-based program  was developed using the University of New South Wales (UNSW) eHealth Authoring Tool, and will be stored on a secure UNSW server. Data security and follow-up questionnaires (on the UNSW server) will be ensured by an independent audit by a security company.

In datafiles kept by Wellbeing cards in the research team at St Vincent’s Hospital, information with personal details (eg name and email address) is stored separately from questionnaire responses and writings. You will be assigned an identification number for the datafile.

Information collected during the program will be retained for a minimum of 15 years if the project involves a clinical trial. After these periods, the data will be destroyed.

In any publication resulting from the study (e.g. peer-reviewed journal paper or conference presentation), information will be presented in a way such that no individuals can be identified.

Will my personal information be sent to others?

Any identifiable information that is collected about you in connection with this study will remain confidential and will be disclosed only with your permission, or except as required by law.          

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